Title

Living with Diabetes

Name of Applicant

Kaberi Dasgupta

Anne-Sophie Brazeau, Meranda Nakhla, Daniele Pacaud, Mélanie Henderson, Constadina Panagiotopoulos, Elham Rahme, Deborah DaCosta

Institutions involved

McGill University
Université de Montréal
University of British Columbia
University of Alberta

Funding source

Diabetes Canada

Inclusion Criteria

  • Adolescent and young adults aged 14 to 24 years.
  • Type 1 diabetes
  • Living in Canada

Abstract

Aim: The purpose of this study is to determine how many young people with type 1 diabetes in Canada feel that they are or could be treated unfairly because of diabetes; how this relates to health outcomes; and how unfair treatment can be stopped or coped with.

Methods: 380 adolescents and young adults (14 to 24 years old) with type 1 diabetes living in Canada will be recruited. Participants will complete an online survey and will have the opportunity to do a capillary mail-in A1c test. The survey includes questions on perceptions of stigma, their blood sugar control, including frequency of both lows and highs, overall well-being, socio-demographics information.

Results: We will use the information queried to (1) calculate the proportion of young people with type 1 diabetes who experience stigma; (2) figure out what factors and behaviours might predict or signal the experience of stigma; (3) see if there is a link between stigma and A1c control and/or frequent lows by report; (4) explore challenges and solutions voiced through the open-ended questions

Conclusion: This will be the first large-scale survey to estimate the prevalence of stigma in young people with type 1 diabetes. This will allow for an appreciation of the magnitude of the problem and the need for developing and implementing solutions. This work is intended to provide an initial understanding of youth’s perspective of striving to live a normal life and to serve as foundation for future research on helping them to achieve this quality of life.

Rationale for posting

The study will be publicized through posters at diabetes clinics, Facebook© pages and websites of diabetes organizations and messages on Twitter©. Given that Diabetes Canada reach all provinces in Canada, it is of great interest to have Diabetes Canada publicise this study to enhance the representation of people from across Canada.

Ethical approval

MP-CUSM-15-581

Project start date

May 1, 2016

Project end date

November 30, 2016

Contact information

Debbie Chan
youngdiabetes@clinepi.mcgill.ca
www.youngdiabetes1.ca
514 934-1934 ext. 44835
1-844-801-5658 (toll free line, effective starting on June 7 2016)